Some of you may know that Anna has been dealing with nasal congestion issues since she was born.
Her pediatrician has always assured me that she would grow out of it, that her nasal passages were tiny, etc etc. This canned response has always infuriated me because they were not the ones seeing her day in and day out. They didn't see how many times a day I had to suction out her nose just so she could breathe. They didn't see the crazy, record-breaking amounts of snot that came out of the one side of her nose. And even though I explained this in detail every.single.time, they made it seem like it was no big deal.
Even though they said it would go away on its own, I tried everything to alleviate her symptoms. We used a humidifier, Vick's vapor rub, sat with her in a steamy room, and used saline drops and suction. I even completely eliminated all forms of dairy from my diet, hoping and praying that would help her breathe better. I took her to the pediatrician twice specifically to have her nose evaluated, but they weren't concerned. Keyword: They.
So imagine my complete lack of surprise when the ICU doctors informed me that Anna's MRI revealed she has choanal atresia. It is the complete blockage of one side of her nasal passage. She has never been able to breathe out of the one side, and the other side was constantly congested. This condition does NOT go away on its own, and will require a minor surgery at some point.
And this right here folks is yet another example of trusting your instincts.
I KNEW that Anna's congestion was not normal. I KNEW that she couldn't breathe well. And I KNEW the doctors were wrong in that she would just grow out of it.
Between this and their diagnosed "3 week stomach flu" that turned out to be a life-threatening condition, one could say I am more than a little incensed at my pediatricians office. I have not decided what this anger means yet.
On one hand, I want to wreak havoc and go to every single health grading and review website and rip them a new one and destroy their reputation.
On the other hand, I recognize that 99.99% of the time, when the pediatrician tells a parent that their child will be fine, they are fine.
But we were that .01%. And I am just struggling with their lack of action over the last month. I keep asking myself that if they had given her more than just a cursory glance at each visit, if they had thought "Gee, more than a week of vomiting might mean a head/brain issue", could Anna's strokes have been prevented? I guess we'll never know.
I know for sure neither one of my children will step foot in that office again, if for no other reason than all of my trust in them has gone completely and unequivocally out the window.